Glioma Patient Support Program

Patients with lower-grade glioma brain tumors can face unique challenges as a result of their diagnosis and care. The Glioma Patient Support (GPS) Program in the Center for Neuro-Oncology at Dana-Farber Cancer Institute is one of only a few in the country dedicated to helping patients with lower-grade gliomas manage areas of their life impacted by their diagnosis and treatment. The program offers you and your loved ones personalized support, resource assistance, and community.

Services Provided By the Glioma Patient Support (GPS) Program

Personalized Support

It can be challenging to coordinate medical and supportive care while managing the demands of everyday life. Our multidisciplinary team, including neuro-oncologists, clinical social workers, and psychiatrists, works with you and your loved ones to address your unique needs and provide ongoing support.

Resource Assistance

The GPS Program offers resource navigators who help to provide you with up-to-date medical and scientific information about lower-grade and IDH-mutant glioma (or isocitrate-dehydrogenase-mutant glioma), as well as resources around well-being and healthy lifestyles. Our resource navigators can also help you access support within Dana-Farber and in your community, including mental health specialists and financial support.

Community

Our patient community is the reason for our program. We provide many opportunities for our patients and their loved ones and caregivers to connect with one another and meet other lower-grade and IDH-mutant glioma patients, survivors, and loved ones with shared experiences. You are not alone in your journey living with a brain tumor. Opportunities for connection include:

  • Monthly virtual peer group meetings where attendees are encouraged to ask for advice and share their stories with others
  • One-on-one mentorships to learn from the experiences of others
  • Virtual and in-person events to learn from experts in the field of brain cancer research and survivorship, including an annual educational symposium

How to Join the Glioma Patient Support Program

Any patient diagnosed with an IDH-mutant lower-grade glioma who has been seen in the adult Center for Neuro-Oncology is eligible to participate in the program at any time during their cancer care.

After your first consultation in the adult Center for Neuro-Oncology, a care navigator or program manager will review your information and reach out to you to schedule a meeting to better understand your support network, lifestyle, and experience with your diagnosis, and to determine how the GPS Program can best meet your needs.

If you've been diagnosed with an IDH-mutant lower-grade glioma and do not hear from the GPS Program after your first consultation in the Center for Neuro-Oncology, please ask your oncologist for a direct referral to the program.

Educational and Support Resources for Neuro-Oncology and Glioma Patients

GPS Program Events

2024 Glioma Specialists Reaching Out With (GROW) Support Symposium

GPS Program Newsletters

Mental Health and Emotional Support Information

Neuro-Oncology Wellness (NOW) Program

The NOW program aims to educate patients and their caregivers about brain tumors and provide resources to promote overall health and well-being.

Whether you are a patient or a loved one who supports a patient, we invite you to join this new community.

Watch the NOW Program Educational Webinars: IDH-Mutant Gliomas video.

External Resources and Advocacy Groups We Recommend

Glioma Support Program Team

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David Reardon, MD
Clinical Director, Center for Neuro-Oncology

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Ugonma Chukwueke, MD, MPH
Associate Director of the Center for Central Nervous System (CNS) Lymphoma

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Damien Miran, MD
Clinical Director, Inpatient Psychiatry Consult Service

Jennifer Royka
GPS Program Manager

Benjamin Peirce, LICSW
Center for Neuro-Oncology Clinical Social Worker

Jennifer Brown, LICSW
Center for Neuro-Oncology Clinical Social Worker

Services and Support at Dana-Farber

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We offer a wide range of support programs and resources for patients, caregivers, and loved ones. Our supportive services are designed to help you navigate your care experiences with greater comfort and ease.

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